Places to look for help in navigating this difficult illness – more to follow
PANDAS Network – http://pandasnetwork.org
PANDAS Physicians Network – https://www.pandasppn.org
Stanford University – http://med.stanford.edu/pans.html
NIMH – https://www.nimh.nih.gov/health/publications/pandas/index.shtml
Moleculera Labs – https://www.moleculeralabs.com
Autoimmune Encephalitis Alliance – https://aealliance.org
The Foundation for Children with Neuroimmune Disorders – https://www.neuroimmune.org
Pediatric Research Advocacy Initiative – http://praikids.org
Aspire – https://aspire.care
PANDAS Canada – https://pandascanada.wixsite.com/pandascanada
PANDAS United Kingdom – https://www.panspandasuk.org
PANDAS Sweden – https://sane.nu
PANDAS Italy – https://pandasitalia.it
PANS PANDAS Hope.com – http://panspandas-hope.com/
The Dreaming PANDA – https://thedreamingpanda.com
PANDAS Sucks –https://www.pandassucks.com
Facebook Groups
PANDAS -Pediatric Autoimmune Neuropsychiatric Disorder Associated w/ Strep – https://www.facebook.com/search/top/?q=pandas%20-pediatric%20autoimmune%20neuropsychiatric%20disorder%20associated%20w%2F%20strep
Homeopathy for PANS and PANDAS – https://www.facebook.com/groups/PANDAShomeopathy/ (in this group you will find such useful information on homeopathy and it’s a very supportive group)
PANS PANDAS and Methylation Support – https://www.facebook.com/groups/pansandpandasawareness/
Saving our PANDAS – https://www.facebook.com/groups/447796052052527/
Books
Childhood Interrupted/Saving Sammy- http://bethalisonmaloney.com
The Impossible Cure – The Promise of Homeopathy – https://www.amazon.com/Impossible-Cure-Homeopathy-Amy-Lansky/dp/0972751408
Homeopathy Beyond Flat Earth Medicine – http://www.beyondflatearth.com
What Happened To My Child – http:// https://www.amazon.com/What-Happened-My-Child-Courageous/dp/1640854126–
A Parents’ Guide to PANDAS, PANS and Related Neuroimmune Disorders –https://www.amazon.com/Parents-PANDAS-Related-Neuroimmune-Disorders/dp/178592768X
PANDAS and PANS in School Settings –https://www.amazon.com/PANDAS-PANS-School-Settings-Educators/dp/1849057443
PANS-PANDAS Strength-Hope-Understanding –https://www.amazon.com/PANS-PANDAS-Strength-Understanding-Educators/dp/1984056247/ref=pd_lpo_sbs_14_t_0?_encoding=UTF8u0026amp;psc=1u0026amp;refRID=GBGF3E5SS81BMM0B4JH6
Brain Under Attack –https://www.amazon.com/Brain-Under-Attack-Caregivers-Encephalitis/dp/0692133275/ref=pd_lpo_sbs_14_img_2?_encoding=UTF8u0026amp;psc=1u0026amp;refRID=GBGF3E5SS81BMM0B4JH6
In a Pickle Over PANDAS – https://www.amazon.com/Pickle-Over-PANDAS-Melanie-Weiss-ebook/dp/B00YT9IFSM
PANS/PANDAS Crisis and Recovery – https://www.amazon.com/PANS-PANDAS-Crisis-Recovery-psychosis-ebook/dp/B07PKRVSF6
Brain on Fire, My Month of Madness(About NMDA Receptor Encephalitis)- https://www.amazon.com/Brain-Fire-My-Month-Madness/dp/1451621388
Videos
My daughter speaking about homeopathy and how it helped her heal https://youtu.be/3kWs34QvbE4
SANE Conference 2019 Speakers from Stanford and Columbia and other notable universities and hospitals speak about PANDAS/PANS – https://sane.nu/sane-sweden-2019-pans-conference/?fbclid=IwAR2aEZY6o3gKZ-4UqWknlC6kzlR6kgpfhEiaveLAjAb6j_VERKkN-FJHnyw
Movies
My Kid Is Not Crazy – https://mykidisnotcrazy.com
Stolen Childhood – https://www.facebook.com/StolenChildhood2018/
Unrest – About ME/CFS – https://www.unrest.film
My daughter’s Amazing Providers – Who we will always be grateful for!
Dr. Jennifer Bahr, ND – Resilience Naturopathic – https://resiliencenaturopathic.com
Dr. Christianne Heck, MD USC, Medical Director Epilepsy Comprehensive Center https://providers.keckmedicine.org/provider/Christianne+N.+Heck/204983
Jamie Boyd, Acupuncturist – http://wholefamilywellnesscentersd.com
Dr. Kayla Ambert DC, RD – https://obchiropractic.com
Dr. Danielle Heistand PsyD, MFT – https://drdaniellehiestand.com