Welcome to my first blog post! If you have found yourself here you may be looking for pictures or stories about cuddly panda bears. Unfortunately, this site is not about fuzzy panda bears it’s about an illness that too many children are being misdiagnosed with. An illness that is commonly misdiagnosed as a psychiatric disorder …
What a crazy six months it has been The beginning of 2020 seemed so promising for my daughter, finally she was beginning to have the college experience she had been dreaming of; challenging and engaging classes, new friends, parties, playing and writing music again and then March 17th 2020 everything came to a crashing halt. …
Sending My Daughter Back To College In A Pandemic Read More »
Upon looking at the title, I can imagine it might not make much sense, so allow me to explain. I want to spend some time meditating on memory considering that I consider it one of the most central aspects in my reflection. But I find that I tend to regard memory in a tactile manner. …
Hello to all! If you’ve read previous posts on this site, you’ll know me as the main subject of the blog. Though you have not actually heard from me. Perhaps you’ve read my mom’s retelling of my story (hopefully an account will be coming from my point of view soon) or seen other previous blog …
Home for the Holidays: Reflections and Lessons Learned Read More »
PANDAS/PANS + Thanksgiving = Stress. Let’s face it Thanksgiving can be stressful even if everyone in your family is healthy, and if you have a child with PANDAS it can be downright unbearable. There’s this idea of “the “Norman Rockwell” picture perfect holiday, which is just not reality. Thanksgiving is also difficult because many of …
In addition to PANDAS/PANS my daughter is also diagnosed with epilepsy. This week my daughter is officially seizure free for one year! Her last record had been for 10 months. No matter what happens this day forward, she has reached a place of where I never thought would be possible for these past 7 years. …
October 9th is PANDAS Awareness Day, Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus occurs when streptococcus (what we know as strep throat) triggers a misdirected immune response and results in inflammation on a child’s brain. In turn, the child quickly begins to exhibit life changing symptoms such as OCD, anxiety, tics, personality changes, decline in …
As a parent of a child with PANS/PANDAS we ask a lot of questions, acting as a detective, trying to get to the bottom of our child’s illness, we want answers, something or someone to blame. We want to know why did this happen? How did this happen? What did we do to make this …
